Croatia

 Big heart to a small heart

Cyprus

Association of Parents and Friends for Children with Heart Disease

Website: www.pediheart.org.cy
Contact Number: +357 22315196
Address: Grammou 11, Karyatides Bld. 15, App. 5, 2006 Strovolos, Nicosia
Primary Contact: Stella Eleftheriadou
Email: pediheart@cytanet.com.cy
Main Goals: To improve the quality of care for children with heart defects by providing funding for specialized research and purchasing essential medical equipment, vital support to families by ensuring free accommodation and resources during their children's hospital treatments and to foster social solidarity by raising public awareness about the challenges faced by children with heart defects and their families.
Organisation Type: Parent and patient organisation

Finland

Sydänlapset ja -aikuiset ry – Finnish Association for Heart Children and Adults

Website: www.sydanlapsetjaaikuiset.fi
Contact Number: +358 44 2727 717
Primary Contact: Katja Laine
Email: katja.laine@sydanlapsetjaaikuiset.fi
Main Goals: Supporting approximately 450 children born each year in Finland with congenital heart defects, many of whom require surgery, and advocating for improved care and lifelong support.
Organisation Type: Parent and patient organisation

France

Association Nationale des Cardiaques Congénitaux (ANCC)

Website: http://www.ancc.asso.fr
Contact Number: +33 6 13 09 18 55
Address: Centre des Côtes, Les Loges-en-Josas, France
Primary Contact: Sebastien Pillias
Email: sebastien.pillias@ancc.asso.fr

Germany

Bundesverband Herzkranke Kinder e.V. (BVHK)

Website: www.bvhk.de
Contact Number: +49 241 912332
Address: Vaalser Str. 108, 52074 Aachen, Germany
Primary Contact: Sebastian Kahnt
Email: info@bvhk.de
Main Goals: Support for families with children affected by congenital heart disease.
Organisation Type: Parent and patient organisation

Bundesverein JEMAH e.V.

Website: www.jemah.de
Contact Number: +49 6032 9910 310
Address: Postfach 11 10, 97627 Bad Königshofen, Germany
Primary Contact: Christina Pack
Email: info@jemah.de
Main Goals: Improving living conditions, medical care, visibility and social participation for adolescents and adults with congenital heart defects (EMAH) in Germany.
Organisation Type: Adult patient organisation

Greece

Panhellenic Heart Disease Association

Website: www.kardiopatheia.gr
Contact Number: +30 6975592614
Address: 8 Kassavetis Street, 11253 Patisia, Athens, Greece
Primary Contact: Konstantinos Chortis
Email: kchortis@yahoo.gr
Main Goals: Legal and organisational continuation of the Panhellenic Association of Patients with Congenital Heart Disease, advocating for patients nationwide.
Organisation Type: Parent organisation

Neistinn

Heart Children Ireland

Website: www.heartchildren.ie
Contact Number: +353 85 723 7797
Address: Carmichael Centre, North Brunswick Street, Dublin 7, D07 RHA8
Primary Contact: Sheila Campbell
Email: sheila@heartchildren.ie
Main Goals: Supporting people of all ages with congenital heart disease to live confidently, stay well and enjoy life to the fullest.
Organisation Type: Parent and patient organisation

Italy

AICCA ETS

Website: https://www.associazioneaicca.com/
Contact Number: +39 252774675
Address: Via Giovanni Pascoli 37, 20097 San Donato Milanese (MI), Italy
Primary Contact: Giovanna Campioni
Main Goals: Supporting and accompanying people and families born with congenital heart disease through psychosocial support, humanisation of care projects and advocacy campaigns.
Organisation Type: Adult patient organisation

Malta

Beating Hearts Malta

Website: www.beatingheartsmalta.org
Contact Number: +356 79468338
Address: Souris, Triq Esprit Barthet, Madliena, SWQ 1507, Malta
Primary Contact: Katrina Aquilina
Email: katrina.aquilina@gmail.com
Main Goals: Offering support and assistance to adults and children born with congenital heart defects.
Organisation Type: Parent and patient organisation

Norway

Voksne med medfødt hjertefeil (VMH)

Website: www.vmh.no
Address: Schweigaards gate 12, 0188 Oslo, Norway
Primary Contact: Anne Giertsen
Email: post@vmh.no
Main Goals: Nationwide association representing adults (18+) with congenital, genetic or early acquired heart conditions.
Organisation Type: Adult patient organisation

Slovakia

Nadácia Detského kardiocentra

Website: https://nadaciadkc.sk/
Contact Number: +421 915 699 551
Address: Pod Krásnou hôrkou 1, 833 48 Bratislava, Slovakia
Primary Contact: Katarina Stano
Email: katarina.stano@gmx.com
Main Goals: Supporting the development of paediatric cardiology in Slovakia and assisting children with heart conditions.
Organisation Type: Adult patient organisation

Spain

Fundación Menudos Corazones

Website: https://www.menudoscorazones.org/
Contact Number: +34 913736746
Address: Calle Doctor Castelo 49, 1º, 28009 Madrid, Spain
Primary Contact: Amaya Sáez
Email: amayasaez@menudoscorazones.org
Main Goals: Supporting people with congenital heart disease and their families.
Organisation Type: Parent and patient organisation

Association of Congenital Heart Disease (AACIC)

Website: www.aacic.org
Contact Number: +34 934586653
Address: Carrer Martí i Alsina 22, Local, 08031 Barcelona, Spain
Primary Contact: Mireia Salvador
Email: info@aacic.org
Main Goals: Supporting children, teenagers and young adults with congenital heart disease.
Organisation Type: Adult patient organisation

Switzerland

CUORE MATTO – Herzfehler Schweiz

Website: https://herzfehler-schweiz.ch/
Contact Number: +41 78 257 27 95
Address: CH-3000 Bern, Switzerland
Primary Contact: Luca Zambrino
Email: praesidium@herzfehler-schweiz.ch
Main Goals: Supporting and advising adolescents and adults with congenital heart defects and improving quality of life through networking and advocacy.
Organisation Type: Adult patient organisation

The Netherlands

Patiëntenvereniging Aangeboren Hartafwijkingen

Website: https://aangeborenhartafwijking.nl/
Contact Number: +31 6 20039393
Address: Molendijk 12, 3632 EN Loenen aan de Vecht, The Netherlands
Primary Contact: Judith van de Meerakker
Email: onderzoek@aangeborenhartafwijking.nl
Main Goals: Providing information, support, advocacy and representation for people with congenital heart defects and their families.
Organisation Type: Parent and patient organisation

United Kingdom

Somerville Heart Foundation

Website: https://sfhearts.org.uk/
Contact Number: +44 1473 252007
Address: 7 Friars Courtyard, 30–32 Princes Street, Ipswich, Suffolk, IP1 1RJ, United Kingdom
Primary Contact: Michelle Woods
Email: michelle.woods@sfhearts.org.uk
Main Goals: Supporting young people and adults born with congenital heart disease across the UK.
Organisation Type: Adult patient organisation

Children’s Hearts UK

Website: https://chfed.org.uk/
Contact Number: +44 300 561 0065
Address: Suite 12, Lakes Industrial Park, Braintree, Essex, CM7 3RU, United Kingdom
Primary Contact: Rajwant Kaur Singh
Email: rajwant@chfed.org.uk
Main Goals: National charity championing children with heart conditions and empowering families and carers.
Organisation Type: Parent and patient organisation