Submitted by Katja on Fri, 02/09/2018 - 08:38 Background information Answering on behalf of * Member organization Co-operating partner Other ECHDO's tasks Choose three most important tasks of ECHDO * Increase understanding of CHD and support for patients of all ages: babies, children and GUCHs (grown-ups with congenital heart disease) in Europe; Create a platform for European CHD organizations for exchanging information and experiences Provide up-to-date information about CHD to patients and their families; Share information about research studies and patients’ experiences within Europe; Lobby for European standards on medical and psychosocial care of CHD patients, including access to safe medicines; Stimulate the development of national CHD support networks; Increase its impact by liaising with other European networks. Other task If other, please tell about it on open textarea * What kind of events ECHDO should arrange in future * Same as earlier More conferences/meetings for members More joint conferences/meetings with other partners (f.ex Eurordis) European camps for adolescents Other If other, please tell about it on open textarea * Open feedback concerning ECHDO's tasks Communication Do you follow us in Facebook? * Yes No I don't use Facebook I am member of the closed FB-group * Yes No I visit ECHDO website * Approximately once a week or more often Approximately once a month or more ofthe Approximately few times a year I have never visited before Information on website * There is enough information ECHDO on website There should be more information about ECHDO If not enough information, plese tell what should be added on open textfield * How do you prefer to receive news * I would like to receive newsletter from ECHDO regularly to my e-mail I prefer news via Facebook I prefer news via website Not special need for a newsletter Open feedback concerning communication Other questions Have you joined the AGM for past three years? * I have attended on the AGM I haven't attend on the AGM If not, would you like to specify the reasons why? Open feedback CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Submit
